Millions of young people could miss out on effective treatments because so few take part in medical research, new data shows.
In England, 18- to 24-year-olds make up 8% of the population but only 4.4% of medical trial participants, according to analysis of National Institute for Health and Care Research (NIHR) data. Experts warn this underrepresentation means new therapies may be unsafe or unsuitable for younger people.
“Young adults face unique health challenges, but treatments are often designed around older patients,” said Kirsty Blenkins of the Association for Young People’s Health. “That can lead to poorer outcomes and reduced trust in healthcare.”
Barriers include low awareness, limited recruitment, and confidentiality concerns. Dr Esther Mukuka, NIHR’s director for research inclusion, urged Gen Z to take part: “Research isn’t just about rare diseases — it shapes how we manage everyday conditions like diabetes and mental health.”
The NIHR’s national volunteer registry now matches people to relevant studies. Experts say broader participation — including by women and ethnic minorities — is vital to ensure future treatments are effective and equitable.
